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What to expect — Options for Surgery

For individuals diagnosed with metastatic (stage 4) TNBC, surgery is not usually recommended. If you have been diagnosed with metastatic TNBC, ask your doctor if surgery is an option for you.

After you’ve received an early stage (stages 1-3) breast cancer diagnosis, you will meet with a breast surgeon to talk about your surgery options. Often, early stage TNBC will be treated with chemotherapy and an immunotherapy drug (Keytruda) before surgery.

Your doctors will recommend a type of surgery based on your diagnosis. Surgical options include:

  • Breast-conserving surgery: The removal of the part of the breast containing the cancer and potentially some healthy surrounding tissue. How much of the breast removed depends on the size and location of the tumor. This surgery may also be called lumpectomy, quadrantectomy, partial mastectomy, or segmental mastectomy.
  • Mastectomy: The removal of the breast or both breasts in the case of a double mastectomy. This option may be used if a tumor is too large for breast-conserving surgery, if an individual chooses it for personal reasons, or if an individual is at high risk of getting a second breast cancer. Several types of mastectomies are available such as:
    • Simple (or total) mastectomy: The removal of the entire breast, including the nipple, areola, covering of the main chest muscle, and skin.
    • Modified radical mastectomy: The combination of a simple mastectomy with the removal of the lymph nodes under the arm.
    • Radical mastectomy: This option is rarely used today but includes the removal of the pectoral (chest wall) muscles under the breast if the tumor has spread into that area.
    • Skin-sparing mastectomy: This procedure leaves the skin over the breast in place while removing the breast tissue, nipple, and areola. This option may be used if an individual prefers less scar tissue and a reconstructed breast that may seem more natural. This, however, may not be an option if the tumor(s) are close to the skin.
    • Nipple-sparing mastectomy: This procedure leaves the nipple and areola in place and only removes the breast tissue. Often, the breast tissue under the nipple and areola are removed to test for cancer cells to determine if they ultimately need to be removed as well. This is more likely used for individuals with small, early-stage cancer.

You will also need to decide whether or not you want to have breast reconstruction surgery and, if so, when that would take place. Studies have shown that Black women diagnosed with breast cancer are often not offered breast reconstruction, so it’s important that you ask your doctor for your breast reconstruction options and, if you decide, a referral to a plastic surgeon. When you meet with your plastic surgeon, ask them what experience they have had with Black breast cancer patients and, if the answer is none, get a second opinion. Individuals who have already had breast reconstruction, but are unhappy with the results (either because of issues with the way it looks or issues with the way it feels) can also choose to undergo corrective breast reconstruction.

  • Breast Reconstruction:Breast reconstruction is an optional type of surgery where a plastic surgeon rebuilds your breast with implants or flaps.
    • Flap reconstruction: With flap reconstruction, a plastic surgeon takes tissue from your stomach, thigh, or back to use in recreating your breast.
    • Implant reconstruction: In implant reconstruction, a plastic surgeon uses a silicone implant or implants to mimic the shape and feel of breasts. The implants can be filled with silicone or salt water.
    • Hybrid reconstruction: This option is a combination of flap and implant reconstruction, using some tissue from another part of your body as well as silicone implants.

Many patients choose to skip breast reconstruction and go flat. Or, survivors/thrivers who initially chose reconstruction may change their minds years later and go flat. Whenever you make the decision, ask your doctor about an aesthetic flat closure. This type of procedure has the best outcomes.

Some patients worry that keloids may become an issue in breast reconstruction. If you’re worried, talk to your plastic surgeon in advance about their experience with reducing the risk of keloid scarring.

A newer surgical technique, called Resensation, can be performed at the same time as breast reconstruction with the hope of minimizing numbness and restoring sensation to the breasts after a mastectomy. The Resensation technique reconnects nerves that are cut during a mastectomy using something called a nerve allograft. It can either be performed during an immediate reconstruction (at the same time as the mastectomy) or a delayed reconstruction (months or years after the mastectomy). Resensation may also be an option for those going flat after a mastectomy and for those considering correcting a previous implant reconstruction. Ask your doctor if Resensation is an option for your treatment.

  • Have we discussed all possible treatment options before surgery?
  • Could immunotherapy (Keytruda) be right for me as part of a treatment plan before surgery?
  • What options do I have for breast cancer surgery?
  • What type of surgery do you recommend and why? Does this take into account research around Black individuals diagnosed with breast cancer?
  • Do I have options for what my surgery scars will look like or where they will be placed?
  • What options do I have for partial breast reconstruction? How many operations do they each require?
  • Can I start partial reconstruction at the same time as my breast cancer surgery?
  • If I choose reconstruction, do you have a plastic surgeon that you typically refer Black patients to?
  • How much time should I expect to spend in the hospital after my surgery?
  • How long will I need to recover before I can return to work? How long before I can return to my normal activities?

Breast cancer surgery happens in a hospital. Before surgery, a doctor will use a mammogram or an ultrasound to find the exact location of your tumor and mark that spot with either a thin wire or a small “seed” inserted very near the tumor. Your breast surgeon will use these markers to make sure that they are only cutting very close to the cancer.

You’ll be given general anesthesia through an IV, which will put you to sleep and keep you from feeling any pain or discomfort during the surgery.

If you are having a sentinel lymph node biopsy at the same time as your lumpectomy, your doctor will inject a blue dye close to the tumor and, depending on what lymph nodes that dye moves to, determine which lymph nodes should be surgically removed.

The surgeon will remove the tumor, and potentially some surrounding breast tissue and/or lymph nodes.

Some patients begin their partial breast reconstruction process at the time of their surgery. Others wait until after their cancer treatment to undergo partial breast reconstruction. Others will choose to skip the partial breast reconstruction process.

Lumpectomies can take as little as 1-2 hours.

After the surgery is done, the nurse will take you to a recovery room where they will monitor you to make sure that you are stable and that you come out of anesthesia safely. When you wake up, you’ll feel groggy and disoriented. If you feel pain or nausea, tell the nurse—she can give you medication. You will have stitches at your incision site(s) (that may be sealed with wound glue) with bandages over them. You may also have a wound drain. This drain is meant to let fluid exit the wound and will be removed a few days after your surgery at a follow-up with your doctor.

Your breast will hurt and you may feel numb or tingly— the doctor will prescribe you pain medicine and other medications to help with this.

Whether or not you will need to stay overnight in the hospital depends on the type of surgery. Someone will need to come pick you up from the hospital, take you to pick up your prescriptions, and drive you home.

Your doctor will give you any instructions you will need before you leave the hospital, which may include how to take care of your incision, how to care for and empty your temporary drain (if you have one), what medications you should take and when, when you can shower (often a few days after surgery), and when they would like to see you again for a follow-up. You should not lift or carry heavy things, drive, go grocery shopping, or do any major physical activity while you are recovering. Ask your doctor when it’s okay to do your usual activities. Make sure that your doctor gives you all of these instructions in writing, so you have them to look back at later.

In general, breast cancer surgery wounds take roughly 2 to 3 weeks to heal. As your nerves begin to heal and regrow, your chest may feel tight, heavy, achy or itchy.

You’re going to feel sore and tired for a while afterwards, with some restricted movement in your chest and arms. It’s important that you get up and move around, though. Try to shoot for a short, slow walk a few times a day. This movement will decrease your chance of infection and blood clots. Your medical team will also give you arm and shoulder exercises to do every day during your recovery. These exercises are meant to help you heal and keep your arms and shoulders from getting stiff. Even if you don’t really feel like it, try to do your exercises every day.

The results of your breast cancer surgery will show whether all of the cancer was removed. Waiting for these results can be hard and stressful—ask your doctor when you should expect to know the results of your surgery.

  • If you have lymph nodes removed, your doctor will give you information about lymphedema. Symptoms of lymphedema include swelling, heaviness, tightness, achiness, tingling, or a feeling of fullness in the hand, arm, chest, or armpit area. Lymphedema may affect Black women 3.5 times more than white women. The earlier lymphedema is detected, the more successful treatment is. If you catch it right away, lymphedema is curable. If you begin to feel any symptoms of lymphedema, DO NOT WAIT and alert your doctor immediately. Learn more about lymphedema in the surgery resource section.
    Tell people how they can help you and don’t feel bad for being direct—people will want to help you, but don’t know how. Some ideas: laundry, cleaning, cooking and grocery shopping, and child care.
  • More than anything, try to do your exercises even on hard days.
  • If the pain medications make you constipated, try including more high-fiber foods into your diet (raw vegetables, beans, fruit, nuts, whole-grain breads) and ask your doctor about potential medication to help.
  • Getting shirts over your head can be difficult—try loose, button or zip up shirts and loose pull on pants.

Treating triple negative breast cancer is incredibly important. It also comes with some side effects. We know that reading a list of potential side effects can be scary and stressful—just because something is on this list doesn’t mean you will definitely experience it. But if we’re being honest, you will likely face something on this list. We’ve faced them ourselves. And we want you to be prepared to tackle it equipped with resources and support. We’re here for you.

You can learn more about recognizing, managing, and minimizing these side effects in our resources section.
For breast-conserving surgery, specific side effects may include:
  • Pain, tenderness, or a “tugging” sensation in the breast
  • Temporary swelling of the breast
  • Hard scar tissue and/or a dimple may form at the surgical site
  • The shape of the breast may change
For mastectomies, instead of discomfort of the breast, people may feel:
  • Pain, tenderness, or swelling at the surgery site
For either type of surgery, side effects may include:
  • Infection is a risk with any surgery and could include symptoms such as a change in body temperature; redness or swelling; pain in the area; the breast feeling warm to the touch; feeling generally unwell, cold, or shivery
  • A small amount of bleeding from the wound is normal, but a medical professional should be informed if it starts bleeding more
  • Hematoma, which is the buildup of blood in the wound and can go away on its own but may take several months and swelling can be drained if needed
  • Seroma, which is the buildup of clear fluid in the wound and can also go away on its own but can be drained with a needle if it causes discomfort or gets infected
  • Limited arm or shoulder movement
  • Numbness in the chest or upper arm
  • Swelling in the hand or arm, which should settle soon after surgery
  • Blood clots may develop in the legs or less likely in the lungs, signs include a painfully swollen leg, chest pain, or shortness of breath
  • Cording may also occur if the lymph nodes are also removed. This is when connective tissue in the armpit gets inflamed and forms one or more tight bands that feel similar to a guitar string and can extend down the arm as far as the wrist or thumb. It is harmless, but can be painful and limit arm movement.
  • Neuropathic nerve pain or post-mastectomy pain syndrome (PMPS), which is pain felt in the chest wall, armpit, and/or arm that does not go away over time.
Additionally, a few side effects impact Black patients disproportionately:
Lymphedema may occur if the axillary lymph nodes are also removed. This condition, which typically leads to pain and swelling of the arms or legs, was found to affect Black women 3.5 times more than white women in a study presented at the 2021 San Antonio Breast Cancer Symposium.
  • Have we discussed all possible treatment options before surgery?
  • Could immunotherapy (Keytruda) be right for me as part of a treatment plan before surgery?
  • What options do I have for breast cancer surgery?
  • What type of surgery do you recommend and why? Does this take into account research around Black individuals diagnosed with breast cancer?
  • Am I a candidate for a nipple sparing mastectomy and Resensation?
  • What options do I have for reconstruction? How many operations do they each require?
  • Can I start reconstruction at the same time as my breast cancer surgery?
  • Do I have options for what my surgery scars will look like or where they will be placed?
  • How much time should I expect to spend in the hospital after my surgery?
  • How long will I need to recover before I can return to work? How long before I can return to my normal activities?
  • What are the symptoms of lymphedema? If I feel any of them, how should I contact you?

Breast cancer surgery happens in a hospital. You’ll be given general anesthesia through an IV, which will put you to sleep and keep you from feeling any pain or discomfort during the surgery.

The surgeon will remove tumor, breast tissue, and potentially lymph nodes.

Some patients begin their breast reconstruction process at the time of their surgery. Others wait until after their cancer treatment to undergo breast reconstruction. Others will choose to stay flat instead and skip the breast reconstruction process.

Mastectomies with breast reconstruction can take as much as 6-8 hours.

After the surgery is done, the nurse will take you to a recovery room where they will monitor you to make sure that you are stable and that you come out of anesthesia safely. When you wake up, you’ll feel groggy and disoriented. If you feel pain or nausea, tell the nurse—she can give you medication. You will have stitches at your incision site(s) (that may be sealed with wound glue) with bandages over them. You may also have wound drains.These drains are meant to let fluid exit the wound and will be removed a few days after your surgery at a follow-up with your doctor.

Your chest will hurt and may feel numb or tingly— the doctor will prescribe you pain medicine and other medications to help with this.

Whether or not you will need to stay overnight in the hospital depends on the type of surgery. Someone will need to come pick you up from the hospital, take you to pick up your prescriptions, and drive you home.

Your doctor will give you any instructions you will need before you leave the hospital, which may include how to take care of your incision, how to care for and empty your temporary drains (if you have them), what medications you should take and when, when you can shower (often a few days after surgery), and when they would like to see you again for a follow-up. You should not lift or carry heavy things, drive, go grocery shopping, or do any major physical activity while you are recovering. Ask your doctor when it’s okay to do your usual activities. Make sure that your doctor gives you all of these instructions in writing, so you have them to look back at later.

In general, breast cancer surgery wounds take roughly 2 to 3 weeks to heal. As your nerves begin to heal and regrow, your chest may feel tight, heavy, achy or itchy.

You’re going to feel sore and tired for a while afterwards, with restricted movement in your chest and arms. It’s important that you get up and move around, though. Try to shoot for a short, slow walk a few times a day. This movement will decrease your chance of infection and blood clots. Your medical team will also give you arm and shoulder exercises to do every day during your recovery. These exercises are meant to help you heal and keep your arms and shoulders from getting stiff. Even if you don’t really feel like it, try to do your exercises every day.

The results of your breast cancer surgery will show whether all of the cancer was removed. Waiting for these results can be hard and stressful—ask your doctor when you should expect to know the results of your surgery.

  • If you have lymph nodes removed, your doctor will give you information about lymphedema. Symptoms of lymphedema include swelling, heaviness, tightness, achiness, tingling, or a feeling of fullness in the hand, arm, chest, or armpit area. Lymphedema may affect Black women 3.5 times more than white women. The earlier lymphedema is detected, the more successful treatment is. If you catch it right away, lymphedema is curable. If you begin to feel any symptoms of lymphedema, DO NOT WAIT and alert your doctor immediately.
    Tell people how they can help you and don’t feel bad for being direct—people will want to help you, but don’t know how. Some ideas: laundry, cleaning, cooking and grocery shopping, and child care.
  • More than anything, try to do your exercises even on hard days.
  • If the pain medications make you constipated, try including more high-fiber foods into your diet (raw vegetables, beans, fruit, nuts, whole-grain breads) and ask your doctor about potential medication to help.
  • Getting shirts over your head can be difficult—try loose, button or zip up shirts and loose pull on pants.
  • You’ll likely need to sleep on your back while you’re healing. Extra support pillows can help.

Treating triple negative breast cancer is incredibly important. It also comes with some side effects. We know that reading a list of potential side effects can be scary and stressful—just because something is on this list doesn’t mean you will definitely experience it. But if we’re being honest, you will likely face something on this list. We’ve faced them ourselves. And we want you to be prepared to tackle it equipped with resources and support. We’re here for you.

You can learn more about recognizing, managing, and minimizing these side effects in our resources section.

For breast-conserving surgery, specific side effects may include:
  • Pain, tenderness, or a “tugging” sensation in the breast
  • Temporary swelling of the breast
  • Hard scar tissue and/or a dimple may form at the surgical site
  • The shape of the breast may change
For mastectomies, instead of discomfort of the breast, people may feel:
  • Pain, tenderness, or swelling at the surgery site
For either type of surgery, side effects may include:
  • Infection is a risk with any surgery and could include symptoms such as a change in body temperature; redness or swelling; pain in the area; the breast feeling warm to the touch; feeling generally unwell, cold, or shivery
  • A small amount of bleeding from the wound is normal, but a medical professional should be informed if it starts bleeding more
  • Hematoma, which is the buildup of blood in the wound and can go away on its own but may take several months and swelling can be drained if needed
  • Seroma, which is the buildup of clear fluid in the wound and can also go away on its own but can be drained with a needle if it causes discomfort or gets infected
  • Limited arm or shoulder movement
  • Numbness in the chest or upper arm
  • Swelling in the hand or arm, which should settle soon after surgery
  • Blood clots may develop in the legs or less likely in the lungs, signs include a painfully swollen leg, chest pain, or shortness of breath
  • Cording may also occur if the lymph nodes are also removed. This is when connective tissue in the armpit gets inflamed and forms one or more tight bands that feel similar to a guitar string and can extend down the arm as far as the wrist or thumb. It is harmless, but can be painful and limit arm movement.
  • Neuropathic nerve pain or post-mastectomy pain syndrome (PMPS), which is pain felt in the chest wall, armpit, and/or arm that does not go away over time.
Additionally, a few side effects impact Black patients disproportionately:
Lymphedema may occur if the axillary lymph nodes are also removed. This condition, which typically leads to pain and swelling of the arms or legs, was found to affect Black women 3.5 times more than white women in a study presented at the 2021 San Antonio Breast Cancer Symposium.
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